Exeter Dementia Action Alliance

The 18th UK Dementia Congress 2024

The 18th UK Dementia Congress 2024 was a truly inspiring and memorable event held in Coventry on 26/27th November.

Over two days, I had the pleasure of meeting countless like minded individuals, all passionate and driven to make a difference for people living with dementia and their families. Many of which until now had been just faces on a screen. The energy of being together can...

November 21st: Carers Rights Day - Recognising Your Rights

“You can’t pour from an empty cup.” It’s a phrase we often hear, and it couldn’t be more relevant for carers. Caring for someone you love is deeply rewarding, but it also comes with significant challenges. Prioritising your own well-being isn’t selfish — it’s essential.

While my focus here is on dementia carers, these insights can benefit all unpaid carers navigating the demands of...

It's World Alzheimer’s Month - Have you Heard of Young Onset Dementia?

When most hear the word dementia it’s often Alzheimer’s disease and older people they think about. In fact there are over 100 types of dementia.

However for this piece I want to raise awareness and touch upon one of the more rare types - Young Onset Dementia (YOD) which means the person diagnosed is under 65.

This presents many challenges such as the person may have a young...

Have you heard of Social Prescribing?

I ask this as recently we had a conversation during a dementia training session about local community resources and I brought the term into conversation.

There were several attendees working in the health and social care sector who had not heard of this important community role leading me to write this brief overview.

At its simplest a Social prescriber (SP) centres around...

Dementia activist praises carers and tells them: 'You matter'

Over the past couple of years I have been advocating for families living with dementia in addition to leading the Exeter Dementia Action Alliance.

I have witnessed family carers on their knees at crisis point, desperate, isolated with overwhelming feelings of helplessness.

At times I have felt useless, but having immersed myself into the world of dementia over the past...

Exeter dementia campaigner’s book features in national collection

Dementia campaigner and author Gina Awad has been selected as one of just twenty UK authors to appear in a new, specialist literary collection.

Gina, the leading light behind Exeter Dementia Action Alliance, published her first book called United in 2022 with the popular and much loved cartoonist, the late Tony Husband.

It not only tackled the serious issue of dementia and its...

What to do when a vulnerable person goes missing

What can you do when a vulnerable person goes missing?

“Over the past decade, I have heard so many stories of vulnerable people going missing, particularly those living with dementia. Many people have been found, but for some the consequences were tragic.

"Last week Eric went to collect a chinese takeaway for himself and Margaret his wife, who was in the car right outside....

Dementia misdiagnosed as the Menopause

There are misconceptions that still exist around memory loss just being part of getting old and this can be a big barrier to accessing a dementia diagnosis.

This year's theme for Dementia Action Week is based around a timely diagnosis.

"It is vital to understand young people get dementia and there are around 40,000 people under 65 living with young onset dementia,” says Gina...